Over the past year, I have enjoyed meeting people across the DC/MD/VA area as I have talked about Lupus awareness. It has struck me how many people’s lives have been by touched by the disease. At one public speaking event, I had the good fortune to meet Ebonique Jones, owner of Divalicious Sweet Treats, a DC custom cake company. Ebonique’s father suffered from Lupus before he passed away in 1997. In his honor, Ebonique approached me about using Divalicious Sweet Treats to help raise awareness for the disease. One thing led to another and Ebonique became a cupcake sponsor of the 2011 DC Walk for Lupus Now and walked alongside Team Butterfly Lessons.
I asked Ebonique why she felt it was so important for her to walk and help raise awareness of Lupus. She said:
“I know first hand how this disease not only cripples the patient’s ability to move and get around, but also the family members who try to do everything to their ability to do what’s necessary to care for their family member. When my dad was diagnosed I truly didn’t understand the disease, but I do remember some days he couldn’t get out of the bed. It was heart breaking to see him that way, but my mom did her best to make sure he didn’t want or need for anything. I think it’s important that families get the help and support they need to battle this disease. So I wanted to do my part and give back to the community and help raise awareness for this cause.”
Ebonique Jones (right) shows her Divalicious Butterfly Spirit at the 2011 DC Walk for Lupus Now!
I feel blessed that I was able to meet Ebonique and that she has been able to lend her unique talents to the Lupus Community.
Katina Rae Stapleton
P.S. If you live in the DC/MD/VA area and would like some Divalicious cupcakes, check out Ebonique’s website (http://sweetdivatreats.com).
Posted in Butterflies Give Back, Fabulous, Guest Butterfly Lesson, Lupus Butterflies, Walk for Lupus Now
Tagged cupcakes, Guest Butterfly Lesson, Lupus, lupus butterfly, Lupus Foundation of America, Lupus Foundation of America DMV, Walk for Lupus Now
I am very excited to be counting down the last two weeks before the 2011 DC Walk for Lupus Now! on April 16, 2011. As you know Team Butterfly Lessons will be in full effect at the walk. But we are certainly not the only team that will be there to raise lupus awareness and funds for the Lupus Foundation of America, DC/MD/VA chapter.
I am very excited that two fantastic walk team leaders will be guest blogging this week on the Butterfly Lessons blog. Both have an incredible story about how lupus has touched their lives. On Monday, we will here from Edie Aultmon, of Team Non-Stop about living with lupus and on Wednesday, Liz Murphy of Team McCulley’s Miracle, will be share her story in honor of her sister Cathy, who recently lost her battle with lupus.
This week Butterfly Lessons will also give a shout to Krista Blackburn, my walk co-chair and leader of Team Kickin’ it 4 Krista. Krista’s team is close to raising $15,000 for the walk. I hope the DC metro Butterfly Lessons family will join Krista for her Happy Hour on April 7th in Arlington, VA.
Katina Rae Stapleton
On December 11, 2011, the Lupus Foundation of America DC/MD/VA chapter will host its Second Annual Gala Luncheon and Auction!
Last year I went to the LFA-DMV’s very first annual gala and auction and had a fabulous time. I came away with a custom scrapbook and a greater understanding of all that the chapter does for women, men, and children in the DC metro area that live with lupus. One of the highlights was hearing the stories of people who have been helped by the foundation. Many of their stories are contained in our chapter video: Chasing Butterflies.
This year’s auction is sure to be a hit! Please come out if you are interested in helping us raise funds for our Patient Navigation program that helps lupus patients find their way through the complications of our health care system.
Auction items include:
- A guided tour of the NFL Today set at CBS Studios.
- A Napa Valley Wine Experience.
- A Jazz Cruise on the Potomac River.
- Gift certificates to some of the DC area’s finest restaurants, including Citronelle, Michel by Michel Richard at Tysons Corner, BLT Steak, Ruth’s Chris Steakhouse, and many more.
- Tickets to the DC area shows and museums, including Arena Stage, Shakespeare Theatre Company, Newseum and many more.
- Sports memorabilia from the Redskins, Ravens, Nationals, Orioles and Capitals.
- Weekend and overnight stays at some of the finest hotels around Washington, DC. Weekend packages are available for the Ritz Carlton, JW Marriott, Donovan House and many more.
Tickets are available online at http://lfadmvannualgala.eventbrite.com/. Individual tickets are $125. The event is Saturday, Dec. 11, 2010 from 11:30 am – 3:00 pm (ET) at the Old Ebbitt Grill, 675 15th Street NW, Washington, DC 20005.
For more information, please contact Kassandra Kearse at 202-349-1167 or firstname.lastname@example.org