I am so pleased to be a ‘guest blogger’! The first DC Walk for Lupus Now was in April 2007, and we had 500 people walking on the sidewalks, because we weren’t big enough to close the street.
On April 16th, we hope to have 3,000 people walking down Pennsylvania Avenue carrying butterflies and spreading lupus awareness – that’s so exciting to us at the Lupus Foundation of America, DC/MD/VA Chapter. This is the biggest lupus event that will happen in this area in 2011. Time and again, people tell me that when they walk, for one day they realize that they are not alone in their fight against lupus – they know that there are other people who understand and who want to find the same answers that they do. Lupus is often a lonely disease, but not on April 16th in Washington DC!
People who know me know that I often think about my mother who died 6 years ago of complications of her lupus and the toll that the drugs had taken on her body over the decades. During that first Walk, on a bright sunny beautiful DC spring day, I looked up at a crystal clear sky and thought, “This one’s for you Mom!” I still have that thought at the start of each Walk, how much she would enjoy seeing all those people who share the same mission. The difference for this Walk though is that for the 5th Anniversary Walk, I’ll also be thinking of so many other people that I have come to know and care about. This one is for each of you, because with the money we raise we will be able to provide a year’s worth of education and workshops and services. We couldn’t do what we do without each person who walks and donates – so truly, this Walk is for each of you who live with this terrible disease, it’s a salute to your courage and your perseverance – thank you!
Penelope “Penny” Fletcher is the President and CEO of the Lupus Foundation of America, DC/MD/VA chapter (LFA-DC/MD/VA). The chapter’s mission is to find the causes and cure for lupus and to provide support and services to all people affected by lupus. The LFA-DC/MD/VA provides services in the District of Columbia, Maryland, and Central and Northern Virginia, including offering current information about lupus, education programs, support groups, and personalized help with the questions that arise for those living with lupus and their family and friends. The chapter also support research and promote lupus awareness. To learn more about what the LFA-DC/MD/VA chapter is all about, watch the chapter video: Chasing Butterflies.
For more information, contact: LFA, DC/MD/VA Chapter, 2000 L Street NW – Suite 732, Washington, DC 20036; Phone: 202-349-1167 or Toll-free in DC, VA, MD, WV: 888-349-1167; Email: firstname.lastname@example.org